EOLP-05. POSTMORTEM TISSUE DONATION: GIVING FAMILIES THE ABILITY TO CHOOSE

نویسندگان

چکیده

Abstract To our knowledge, Gift From a Child (GFAC) is the only dedicated consortium providing autopsy resources for children with brain tumors. Using parental data and experience of being multi-institutional post mortem CNS tumor collection program, GFAC seeks to inform medical professionals need approach families about post-mortem donation demonstrate how barriers can be overcome. Much like one that occurred organ donation, cultural shift needed goal offer every family option donate. Collected survey shows, 98% who donated were satisfied their decision, compared 20% did not donate decision. Most want provided opportunity chooseto donate, citing desire advance research help future families. For donated, over 71% initiated conversation clinician. Among those 58% reported they had been asked. The healthcare team time both groups. Without initiated, many remain unaware necessity impact on advancing research. timing structure brought up impacts if proceed donating, however, shows withholding this frequently more distressing Parent interviews indicate majority are most open once it’s evident child will survive during transition hospice care. Presentation as driver research, helping next child, key step in family’s grieving process positively correlate decision

برای دانلود باید عضویت طلایی داشته باشید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Laparoscopic kidney donation - giving in the best way possible.

Laparoscopic donor nephrectomy is the preferred method of living kidney donation at most transplant centres. There are various techniques, all with their own reported benefits. This editorial gives a brief overview of the various methods in the context of ensuring maximum safety and benefit to the donor without compromising kidney transplant outcomes.

متن کامل

Embryo donation families: Follow-up EMBRYO DONATION FAMILIES: A FOLLOW-UP IN MIDDLE CHILDHOOD

Couples who conceive using donated embryos rear a child to whom they are genetically unrelated. It has been suggested that this may have negative consequences for parenting and child development. Findings are presented of the second phase of an exploratory study of families with a child conceived through embryo donation. Seventeen embryo donation families with a 5-9 year old child were compared...

متن کامل

Education Vouchers: The Right to Choose or to Own?

Education Vouchers: The Right to Choose or to Own? M. H. Hassani Shalmaani, Ph.D. Using education vouchers is one way of increasing parental access to schools and hence, creating rightful choices for them in regard to schools. Since such rights require governmental cooperation, it is necessary to delineate the boundaries of parental rights in order to clarify if the parents have s...

متن کامل

Making meaning in the legacy of tissue donation for donor families.

CONTEXT-Individuals needing lifesaving (heart valves, skin grafts for repair of critical burn injuries) and life-enhancing (corneas, bone and tendon grafts, skin, and veins) tissue donations outnumber the tissues available for transplant. OBJECTIVE-To describe the grief family members experienced 6 months after donation and to learn how family decision makers gained meaning from the decision to...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

ژورنال

عنوان ژورنال: Neuro-oncology

سال: 2022

ISSN: ['1523-5866', '1522-8517']

DOI: https://doi.org/10.1093/neuonc/noac209.410